• Survivor or Caregiver

TBI One Love Survivor Jeremy Papucci

Hello, my name is Jeremy.

When your body is forming in the womb sometimes there are left over particles which your body will form a sack around to isolate them from the rest of your body and more often than not this sack, or more commonly known as a "cyst", will lay dormant inside of your brain. Very few people know that these even exist inside of their brain because it will have little to no affect on them. I was one of the "lucky" ones who did have many adverse affects. The cyst created the common mis-shaped brain abnormalities and mental characteristics of a schizophrenic, and it was also blocking my pathways of information to flow so my memory suffered very drastically causing me to have dementia, which is just a general term for a decline in mental ability severe enough to interfere with daily life, which it definitely did do!

I was to the point that I could not remember what I was doing while in the process of doing it so post it notes became my new best friend since I used them so frequently to  write myself reminders as to what I was doing so that when I forgot I had something to refer to. These affects ultimately required me to have brain surgery that took place on October 28, 2014 at the age of 37. The cyst that had to be removed was estimated to be about 6 cm x 4 cm.

After my surgery I spent several weeks at the Rehabilitation Hospital of Indiana in Indianapolis (RHI) and was also the facility that I was sitting in when my stroke occurred because of the disruption caused to my brain during surgery. I recognized what was happening instantly because I knew the signs of a stroke so I immediately called for a nurse who rushed me to have an MRI but by the time my stroke was confirmed it was too late to reverse the effects and the damage was permanently done leaving me with no feeling on the right side of my body, although I do still have full use of everything.

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